Epilepsy – Fact and Fiction

Epilepsy is one of the many invisible illness people can have. In fact it is said that one in every 103 people have the condition. Considering how many people have epilepsy, there is still a stigma and a lack of knowledge amongst people that don’t have or know any one with epilepsy. I am a strong believer in trying to educate people that might not know that much about epilepsy. After all someone recently said to me knowledge is power. It is beneficial to learn about epilepsy as you never know when you might encounter some one with it. Now I am not a doctor or an epilepsy specialist, a lot of this is my own knowledge that I have learnt over the years since I was diagnosed in my early teens. Some of facts and myths are obvious to most people where as others are hopefully educating. The myth: Epilepsy is a… View Post

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Behind The Wheel With Epilepsy

It was past my 17th birthday and I was so excited to finally start driving lessons. Most of my friends were already driving and I wanted in! I was diagnosed with epilepsy when I was around 14/15, I just accepted and didn’t realise how it could affect my life. My seizures were controlled so I was able to have driving lessons. However I was due to have University so I never got to take my test, if I could turn back time I would have made sure I took it. As I went through University I had no problems with my epilepsy at all. I decided after University I was going to start driving lessons again. Unfortunately before I got chance to I started having seizures again. After then I realised that I couldn’t learn to drive unless I was seizure free for a couple of years. I was absolutely heartbroken. Several years on and I continue to live… View Post

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Perpetual Tiredness

I have reached the point when tiredness and stress appears to have taken over. It is now affecting me in many ways. Any mum will identify with opening your eyes in the morning and feeling as though you have not enjoyed a wink of sleep. Trudging through days with low energy is the domain of the mum with young kids. Nothing new here. But I no longer have children who wake constantly through the night. My body is past the rigours of producing milk 24/7. Most nights, I am in bed by 10pm (sometimes a little later) and I wake again around if not before 7am. This is 8 hours of sleep. It’s hardly ever unbroken sleep but for the regular person, it should absolutely be enough to wake feeling reasonably refreshed and ready to tackle the day. But that’s not how I wake up. On good days, I can wake with… View Post

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International Purple Day – Epilepsy Awareness and My Story.

Yesterday I wrote a blog post explaining and informing you about International Purlple Day, at the end of that post I told you I would be sharing my purple day photos and my Epilepsy Story in the hope of creating some awareness. Here I am wearing purple. When I was fourteen I was diagnosed with epilepsy, I had several seizures before my diagnoses of Juvenile Myoclonic Epilepsy, which is typically generalized throughout the brain. I was having the typical symptoms of JME (arms flinching, legs buckling.. soon after I woke up in the morning) for several months before my grand mal, but no one knew what it was so we just ignored them because they didn’t seem to cause me trouble after 30-45 minutes from waking up in the morning. My fist grand mal seizure that I recall was whilst I was camping with a friend, I remember waking early morning and my… View Post

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